​This page contains websites that provide information or discussion, relating to the complex ethical, legal and social implications of the latest technological developments.

​Policy & Ethics
​ Committee

This page contains details and links for several recommendations of this expert committee of the European Society of Human Genetics. Previously known as the Public & Professional Policy Committee.

Progress
​Educational Trust

Informing debate on assisted conception and genetics, the Progress Educational Trust's website contains downloadable documents on topics such as genome editing & mitochondrial donation. 

Human Variome Project:
ethics resources

This page provides many resources relating to ethical, legal and social issues related to the storage and sharing of human genetic data.  

Nuffield Council
​on Bioethics

An independent body that examines and reports on ethical issues in biology & medicine. Downloadable ethical reviews, reports & briefings on e.g. NIPT, genome editing & mitochondrial DNA disorders.

Clin. Ethics & Law Unit Southampton

Several highly thought-provoking pages, including: Ethics of Genomics.  Research at the Clinical Ethics and Law Unit at Southampton (CELS) is bridging the gap between current clinical practice and emerging ethical dilemmas.​    

HFEA
​UK

The Human Fertilisation and Embryology Authority (HFEA) is the UK Government's independent regulator overseeing fertility treatment and research

ASHG Policy &
​ Advocacy Overview

A large set of policy documents relating to ethical & legal issues in e.g. Conduct in Genetic Research & Societal Uses of Genetics. Pages provided by the American Society of Human Genetics.

Global Alliance for
​Genomics & Healthcare

It contains a set of ethics documents & guidelines relating, for example, to genomic data sharing, that are said to be "ready-to-use".  Downloadable PDFs with translations in over 12 DIFFERENT LANGUAGES.

ELSI program at 
​NIH, USA

The Ethical, Legal and Social Implications research program information page at the National Institutes for Health in the USA.    
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