ESHG Genetic Educational Materials & Sources
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​This page contains websites that provide information or discussion, relating to the complex ethical, legal and social implications of the latest technological developments.
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Public & Professional
​Policy Committee

This page contains details and links for several recommendations of this expert committee of the European Society of Human Genetics.
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Progress
​Educational Trust

Informing debate on assisted conception and genetics, the Progress Educational Trust's website contains downloadable documents on topics such as genome editing & mitochondrial donation. 
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Human Variome Project:
ethics resources

This page provides many resources relating to ethical, legal and social issues related to the storage and sharing of human genetic data.  
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Nuffield Council
​on Bioethics

An independent body that examines and reports on ethical issues in biology & medicine. Downloadable ethical reviews, reports & briefings on e.g. NIPT, genome editing & mitochondrial DNA disorders.
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Clin. Ethics & Law Unit Southampton

Several highly thought-provoking pages, including: Ethics of Genomics.  Research at the Clinical Ethics and Law Unit at Southampton (CELS) is bridging the gap between current clinical practice and emerging ethical dilemmas.​    
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HFEA
​UK

The Human Fertilisation and Embryology Authority (HFEA) is the UK Government's independent regulator overseeing fertility treatment and research
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ASHG Policy &
​ Advocacy Overview

A large set of policy documents relating to ethical & legal issues in e.g. Conduct in Genetic Research & Societal Uses of Genetics. Pages provided by the American Society of Human Genetics.
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Global Alliance for
​Genomics & Healthcare

Regulatory and ethics "toolkit" - a set of ethics documents related primarily to genomic data sharing, that are said to be "ready-to-use".  Downloadable PDFs with translations in over 12 DIFFERENT LANGUAGES.
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ELSI program at 
​NIH, USA

The Ethical, Legal and Social Implications research program information page at the National Institutes for Health in the USA.    
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European Journal of Human Genetics

​​ESHG home

DNA Day Contest 2020

Website © Edward and Adam Tobias, 2020. Please feel free to get in touch, using the contact form, e.g. with any comments or suggestions for amendments, such as adding up-to-date, high-quality, free educational sources. The accuracy, precision or comprehensiveness of the information and views provided on this website, or on the pages to which it directly or indirectly links, cannot be guaranteed.  The information available on this website, & on the pages to which it links, is not intended to replace professional health care. It is non-contractual, & can be changed at any time. 
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European Board of Med. Genetics

National human genetics societies

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  • Home
  • For genetics professionals
  • For universities & students
  • For patients & families
  • Non-genetics specialists & primary care
  • For secondary schools
  • For primary schools
  • Ethical, legal & social implications